Monday, June 29, 2009

Prayer Request

Hey Everyone,
Please pray for a family I know? They’re 11 weeks pregnant and the baby just went through its first ultrasound. The prognosis is not good, and the family is asking for prayers, as their first born was diagnosed with the same thing and was miraculously healed, details follow. Here’s an email excerpt, I changed names for privacy:

The prognosis is bad, as it was for Jerry. It’s called cystic hygroma which basically means that the the lymphatic system isn’t working right so fluid is collecting inside the baby, if it doesn’t resolve the baby’s heart will fail. We don’t know yet if the fact that Jerry had this and it resolved (through a lot of prayer) changes the outlook, it is such a rare, rare thing to happen that it is hard for us to imagine that they aren’t related but the yale doctors (we will have an appointment probably this week or next up at Yale) maybe can tell us that. The causes of this are either genetic (various disorders) or just something went wrong in development. As best we can tell Jerry’s wasn’t genetic (unless extreme stuborness is a genetic disorder). There isn’t very much known about this because something like 90% of people that find out they have this abort (which obviously we would never even consider), except that most babies die. We would just be very thankful to all of you if you could include us in your prayers.
Everyone is doing okay here, Jerry is really concerned but we are trying to help him through this, there aren’t alot of answers, not really a whole lot the doctors can tell us either (especially since I won’t do invasive testing). I am assuming they will put us on the same regimen as with Jerry which is ultrasounds every two weeks to check on the baby until I can feel movement and then just once a month to see if anything is getting better, and then an echocardiogram to check the baby’s heart at 25 weeks (this one is at Yale as well) since heart problems can be associated with the genetic disorders we are talking about (Turner’s syndrome if it is a girl, Newnann’s syndrome if it is a boy, or trisomy 18, which is fatal, and occassionally Downs syndrome).

1 comment:

Anonymous said...

We will continue to keep this family in our prayers, and do all we can for them!